17 JanWhat’s so funny about cancer?

Gilda’s Club Grand Rapids is currently offering a program called “What make you laugh about cancer?” during the week of laughfest (www.laughfestgr.org in case you don’t have tickets to one of the many amazing venues yet!).  It’s an evening where survivors and supporters share stories about their cancer experience that made them laugh.  While some find it hard to believe there’s anything funny about cancer, this got me to thinking about my journey and the number of really hard, full-on belly laughs we had over the craziest things.  I know that laughter is supposed to have restorative qualities… to help with the emotional healing side of the process.  The more I think about it I believe that a strong (or just plain twisted) sense of humor is the key to surviving anything!

What is the tipping point that takes something from being horribly wrong to being horribly funny?  Have you ever been at the point when you thought all hope was lost?  Your flight is cancelled, your luggage is in airport purgatory somewhere, all hotels are booked and as you start to wander around looking for a place to sit and stew and just be angry at the world, the heel falls off your shoe.  And suddenly… you just laugh!  Or, at least I did when this happened to me.  And I continued to laugh at the noise I made as I trucked around O’Hare airport “slap. thump. slap. thump. slap. thump…”  (The looks I got from people were precious!)

When I first started this blog I intended to use it as a way to update my friends and family as to my medical condition so I didn’t have to repeat the news over and over again.  Then it became an outlet for the emotional roller coaster I was on.  I’m not sure when I realized that some parts of it were funny.  But I kept getting feedback from people who said they read my blog and laughed.

Is there anything about Cancer that’s funny?  On the surface – NO.  NOT ONE BIT.  But when you’re going through it and your body parts are being replaced and weird tests are being run, the effects can be downright funny.  Even hysterical.  I re-read some of my own posts last night and laughed at myself.  I can see why some of my friends think I’m just crazy.

One great laugh that came to mind was on that erupted after my bi-lateral mastectomy.  (I’ll admit that it could have had something to do with the pain meds too)  I was standing in the bathroom taking one of the first looks at my new “set”.  I was bruised, bandaged and bloody.  The drainage tubes were still in so I was carrying my “blood buckets” around in my hand.  I was horrified by the site!  I started to get a little teared up when suddenly my right implant jumped… a muscle spasm!  This lead me to wonder if I could control that… if I could now flex my breasts like Arnold.  As I’m practicing my new bar trick my cousin Steph walks in, eyes wide and asks “WHAT are you doing?!”.  In my eagerness to show her I over-flex, my implant/foob jumps up on my collar bone and my stitches start to bleed again.

She looks at me absolutely dumbfounded like “did you do that on purpose?” and we both crack up.  She’s holding gauze on my boob, reaching for medical tape or a band aid and we’re both laughing so hard we’re crying.  Horrible?  Or horribly funny?  I’m still not sure but I know it made me feel better!

I’m glad there are organizations like Gilda’s Club that are open to sharing all aspects of the Cancer journey; the good, the bad, the ugly, and especially the FUNNY.

16 Jan(Getting some) fun out of life

When we want to love, we love
When we want to kiss, we kiss
With a little petting, we’re getting
Some fun out of life

When we want to work, we work
When we wanna play, we play
In a happy setting, we’re getting
Some fun out of life

Maybe we do the right things
Maybe we do the wrong
Spending each day
Wending our way along

But when we want to sing, we sing
When we want to dance, we dance
You can do your betting, we’re getting
Some fun out of life

Maybe we do the right things
Maybe we do the wrong
Spending each day
Wending our way along

But when we want to sing, we sing
When we wanna dance, we dance
You can do your betting, we’re getting
Some fun out of life

**what are you doing today?

- Billie Holiday; but check out the version by Madeleine Peyroux!

02 JanMushing Observations

This weekend my continued quest to try new things, live like I mean it, and generally RTFO led me to Michigan’s Upper Peninsula and Alcan Kennels where I learned how to dog sled. I have a few observations I’d like to share from this epic adventure:

  • Observation #1:  At a musher’s cabin you shouldn’t get hurt or sick. While there are five shelves of dog medicine, carefully labeled “for paws”, “eyes”, “worms”, “ears”, etc., there is only one small box of assorted people pills carrying the label “People medecine” hastily scrawled in black sharpie.
  • Observation #2: Dogs don’t stop.  They just DON’T STOP.  Not if you fall down, not if there’s a snowmobile stopped in the middle of the trail in front of you and not even if they have diarrhea.  That’s not something I really needed to know (Or see! Or smell!).
  • Observation #3: “Gee” means go right.  ”Ha” means go left.  ”Whoa” means nothing at all (see observation #2).  An upcoming corner means “speed up like crazy”.  Apparently they love the corners and just can’t wait to see what’s around it.  It’s a bit like “crack the whip” when you’re behind them on the sled.
  • Observation #4: There is no noise quite like 65 sled dogs when they know you are approaching with their dinner!
  • Observation #5: The dogs are mostly really sweet (and I totally forgive the one that tried to steal the beaver mitten off my hand, but not the one that bit my elbow for no apparent reason).  They look back and “check” on you along the trail and they really respond to encouraging words.  There’s nothing like the sounds of the sled, the dogs panting and their footfalls on a quiet, snowy trail.
  • I might be hooked… just a little!

    Special thanks to Al, Joe, RJ and Jim for making this all possible.  It’s not something Gavin or I will ever forget!

    30 OctProud Mother

    Gavin found a $10 bill on the floor at the movie theater the other night. I gave him two options: he could pay me back (he owes me for some games he bought) or he could buy candy and popcorn. My friend Jim also noted that there was a fundraiser going on too and pointed toward a wishing well. Imagine my surprise when Gavin walked over the wishing well and put the $10 into it. I asked him if he knew which charity he had just given his money to and he said “breast cancer”. There was a breast cancer ribbon on the well. :-)

    I love it that he didn’t even think twice. He walked over and put the money in like it was no big deal. :-) Such a proud moment for a mom!

    09 SepIn loving memory of Mary Jane Kars

    A kick-ass athlete, friend, mom, wife… and so much more. The woman with a story, a laugh and a shoulder for everyone else to lean on. I’m thinking of you today especially and hoping that all of this activity lately around our story is something that will somehow help others. It’s not always easy to tell but it feels right to share it. I think you’d like what I’ve been up to lately!

    In loving memory of Mary Jane Kars – October 16th, 1948 – September 9, 1984.

    30 AugWhen the universe speaks…

    A few people (OK more than a few) have been on me to take my story and write a book. I like the idea of it some days but on most days it seems quite silly. My story is old news and it really isn’t that interesting.

    Friends all around me are writing books. But they have way more interesting things to write about than me and a better command of the English language as well. I don’t write so good.

    I was in a cab in Chicago back in June with a very happy cab driver. I’ve never seen such a happy cab driver! He couldn’t help himself, he HAD to share his story with me. Out of nowhere he announces “I wrote a book! I just picked up the first copies today.” and he hands me the freshly printed copy. It’s in some language I can’t read and he goes on to explain that he’s written some history of Los Angeles in his native tongue. He wasn’t living in Los Angeles and in fact had never lived in Los Angeles but chose to write and publish a book about it. Then he says to me “Who ever would believe that I would write a book!

    Is the universe trying to tell me something?

    20 JunMothra

    Sitting in a hotel room in Death Valley, CA and catching up on emails. Suddenly I feel something slam into my upper chest area and I jump up and quickly brush it off. My breathing returns to normal as I recall the large moth that was on the inside of the window earlier. It’s not a black widow or giant cockroach. Whew!

    I resume typing only to note movement under my shirt! Mothra has not been flicked off my chest but rather down into my pajamas where she is helplessly flying between the foobs, knocking against them as if to say “help! Let me out!”. But my foobs cannot hear and they certainly cannot feel the plight of the giant desert moth.

    I’ll admit I had a moment of panic but then released her to the wild. I’m quite certain she’ll never be the same… nor will the other hotel guests after seeing me run outside and lift up my pajama top, effectively flashing everyone.

    Think I’d best call it a night.

    05 JunThe Healer

    I can’t believe I didn’t write about this one sooner. While in South Beach I thought I would treat myself to an in-room, deep tissue massage. This was a very nice hotel and they set everything up for me. Sarmenza (name changed to protect me from a lawsuit) arrived on time and efficiently set up her table in the middle of my room. She was a short but strong-looking woman from somewhere in South America and I struggled a bit to understand her through her accent.

    She asked if I had any recent surgeries or areas of concern. I informed her of my recent mastectomy and reconstruction and told her that my pectorals could be fairly tight at times. She took that all in stride and asked me to undress in my bathroom and then climb up on the table face down. My first shock came when I realized she was climbing up on the table on top of me! She basically mounted me and then proceeded to use her knees to crawl up and down my body, pressing her kneecaps into my muscles. I found the experience rather odd but soon convinced myself that this was just how massages were done in South America.

    Too soon it was time to flip over and she began massaging the front. She started with my neck and then worked her way down to the pectorals. I tensed as her hands when right down the front of me between the implants. She asked “Is this all right?” And I thought she was asking about rubbing my pecs so I said yes. Imagine my surprise when her hands started working circles around my implants! I must have tensed up completely because she told me to relax and then closed her eyes and kept rubbing. I convinced myself that she was channeling healing energy to my foobs and tried to go with it.

    It gets better… as she’s rubbing my foobs she asks me if I would like to meet her later at her gym and workout together. Now I’m wondering.. was she trying to heal me or pick me up? The lure of the foobs – you can’t resist!

    05 JunPost Mastectomy Dating Etiquette

    Its part an experiment, part an accident that I’m out in Buckhead (Atlanta) at a bar in a very low cut T-shirt. The shirt wasn’t always this revealing but since my augmentation it’s certainly become a lot more risque’! I knew it was a bit daring when I put it on this morning but it’s from Anthropologie, its super cute and I spent too much on it to let it go just because I had “work” done.

    So here I am, martini in hand, suddenly aware that men aren’t looking me in the eye like they normally do. Their gaze falls somewhat lower. This leads me to wonder… In the world of P.M. (post mastectomy) dating, at what point am I obligated to divulge that the view they’ve enjoyed is really the work of a master plastic surgeon. A work of art that definitely looks better in clothes!

    I know “life is like a box of chocolates…” but does that apply to fake limbs too? You really don’t know what you’re going to get! I’m still surprised by the number of people that don’t understand that a mastectomy is nothing at all like a breast augmentation. In augmentation the doctor puts implants under your real breast tissue. In a mastectomy they remove the breast tissue and put an implant in it’s place. In my opinion it’s no different than a fake limb. I can’t feel a thing.

    How does the woman that stuffs her bra explain that? If you’ve done this; let me know how you’ve explained it when the tissue flew out. How do I casually say “Hey… there’s something I’ve got to tell you.” If I say it too early in a relationship I’m a sappy, over-sharing, over-thinking female. Plus I sound like I have a serious ego. “I know you want me and are likely to attempt to touch my breasts soon”. However, if I wait until they’re actually at the point where they are about grab a handful and get a surprise, then I’m a major mood-killer. Imagine that you’re in the heat of the moment, that magical kiss, the hormones are raging and his hands start to travel. Panic sets in as you realize there is no easy way to communicate the big surprise. Objects are faker than they appear? Life is like a box of chocolates? Surprise?! What do you say?

    Maybe I should just get a sign to wear on my forehead. Better yet, before anyone is allowed to go on a date with me they have to read my written disclaimer. They have to sign at the bottom if they accept or decline the terms and then I don’t have to explain anything. The terms would go something like this:

    “… Signing of this document in no way guarantees the progression of the relationship beyond second base. Furthermore; the signer (herein after referred to as “handler”) acknowledges that they have no rights to continued usage or unlimited access. Handler agrees that I make no warranty as to the compatibility or sustainability of the assets. This contract is non-transferrable (you can’t give access to your friends), legally binding and I reserve the right to change the terms and conditions at any time.”

    Chime in if you’re a lawyer. ;-)

    03 AprSelective Memory

    Dear Gavin,

    It’s hard to know where to start so I’m going to go all the way back.  My earliest memories of my mom include some type of competitive sport; usually racquetball or softball.  She played both quite well.  Every Saturday morning in the winter she would get me and Uncle Vaughn up and take us over to Racquet’s West for her game.  She always let us take a friend so we wouldn’t get bored. Sometimes she’d check us into the kid’s area but most of the time we’d be free to run around the facility for an hour or so.  I know… I’d never let you run around a gym with your friends at age 7 but it was the 70’s and parenting was just a bit different back then.  She didn’t worry about weirdos getting us, especially with the way your Uncle Vaughn would act.  ;-)   I mean, what person would want to mess with four (we EACH got to bring a friend) crazy, hyper, sugar-charged kids that were running around with racquets in one hand and a box of Milk Duds from the vending machine in the other?  Occasionally we would get in trouble, like the time Aunt Stacie and I put shampoo into the whirlpool and the bubbles took over the locker room (oops).  But most of the time we’d sneak into a court and practice our racquetball skills until some adult would show up for their game and kick us off. 

    On Friday evenings in the summer she played softball for the church women’s league; Bethel CRC.  My Mom played third base because she had quite an arm!  All the games were at the Christian Reformed Recreation Center.  This was a huge park that had a gravel parking lot that stretched on for miles and hundreds of softball fields and a play area that had a rocket ship and a wooden boat and the world’s tallest tube slide made out of old oil drums that were welded together and painted red and yellow.  The slide looked cool but it always terrified me.  You never knew if your ride down it was going to be smooth or if you were going to catch a rough spot on the inside and end up with a nasty rug burn on your skin.  Plus the bigger kids hung out by the slide and rumor had it, kissed in the slide.  EW – gross! 

    In 1980 mom’s team won the league.  I remember this so clearly because the team named me the official bat girl.  I would sit on the bench and then run up to pull the used bats out of the way before the next hitter approached the plate.  It was an honor and I took this job very seriously.  The pitcher was a woman named “Ma” and she had a wicked slow pitch.  One of her daughters played catcher and another was short stop.  They were complete jocks.  Funny thing now that I think about it… I don’t recall ever actually seeing them at church.  I wonder if they were church league ringers?  There was a woman in center field named Bess.  She didn’t move all that quickly but she could hit the ball a ton.  I also remember Arlene, a quiet, extremely thin woman who couldn’t hit, throw or catch a ball.  They put her in right field and prayed whenever the ball went in her direction.  I remember seeing her at church every Sunday.  

    My first memory of cancer occurred when I was around 8 or 9 years old.  Vaughn and I were brought to the kitchen table for a family talk and Dad informed us that we were going to get a new in-ground swimming pool because Mom had to have some surgery and the doctors thought it would be good exercise for her to swim.  I don’t think they ever even said the words “breast cancer”.  At that age you would think that I would’ve been able to handle at least some of the truth but then again this was your Grandpa that got to deliver the message. He’s not known for his way with words or ability to handle any type of conversation in a normal and sensitive way.  So I thought “cool… we’re getting a new pool”. 

    I don’t even know for sure if she had chemotherapy for her first bout.  I’m assuming she did because it was the late 70’s and they probably treated all cancer with a good ole dose of poison.  My memories include spending a lot of time at Aunt Steph’s house.  I’m sure this was really hard on my Aunt Lou who had to keep a stiff upper lip and act as though nothing major was going on.  She pulled it off though.  I don’t think I ever grasped the gravity of the situation.  Steph and I played hard and giggled well past our bedtimes, playing games like “truth or dare”.  The one time I was brave and chose dare she made me run through the house with my nightgown pulled up yelling “I let a puff puff”.  Yes.  She’s a little strange.  We thought it was hysterical at the time.  I guess I understand now why Aunt Lou didn’t laugh with us so much. 

    I think my mom had a single mastectomy but I really don’t know.  I know I shared everything with you and you were only 4.5 years old but you really seemed to get it.  What was the better approach?  I wish someone would have told me what was going on for real or at least written stuff down.  The only reason I think she had a single mastectomy is because Steph said she saw down the front of her bathing suit following the surgery and could tell one boob was missing.   I don’t even know if she had reconstruction… I’m sure she did eventually. 

    Why can’t I remember these important details yet I can recall the names of the women on her softball team?  I can even recall that Bess always wore the same green “BEKINS” shirt.  This drives me nuts.  Are kids really that self absorbed or was it just me?  Or were the memories so painful that some part of my psyche has blocked them for me so that I could have a half way normal childhood?   I see pictures from back then and there she is… in the hospital in her blue robe holding a double boob cake and smiling at the camera.  I can tell she took the time to do her hair and even put on some red lipstick before the photo was taken.  Did she feel beautiful and wanted and loved or was she devastated and just putting on a strong front for that photo?   Next to the photo in the scrap book was a folded piece of paper with a rough drawing of two stick people in hospital beds with the words “Roses are Red.  Violets are Blue.” on the front.  You open it up and it says “You’re a little crazy but I still love you.  Love, Jenny”. 

    She came home from the hospital without a breast and probably more than that…  but I don’t get to know what she gave up or how she felt.  I can’t stand that.  I can’t get over the fact that I am covering the same ground that she did all those years ago and I don’t have a clue how she got through it.  Was she able to look at me and Vaughn without feeling like her heart was going to tear into pieces just over the thought that she might not be around to see us grow up?  That’s how I feel sometimes when I look at you and then I quickly look away and blink away any tears so that you don’t see me crying.  Did she do that too?

    Life returned to normal after that.  Mom came home from the hospital and we started working on the new pool.  We stayed at home, went to school, had sleepovers with friends and did normal family things (at least for a little while anyway).  My dad thought it would be a good idea to put rocks around the pool as landscaping but either didn’t have the money or was too cheap to have somone actually put the rocks down.  He had the truck dump them in our driveway and then called in every friend and relative crazy enough to help and made us load rocks, one-by-one, into wheel barrows, cart them into the backyard and then unload them around the pool area.  At one point I slipped on a rock and fell down and skinned my knee.  It wasn’t bad but clearly I was looking for a little attention and ran crying to my mom.  She looked up from the rock pile briefly, said “no timeouts for injury” and went back to her work.  Years later I found myself analyzing this incident (in addition to plenty of other incidents) in front of a professional counselor because it really stuck with me.  I had a brief feeling that my mom didn’t care and it rocked my world (no pun intended). 

    What if I accidentally made a comment like that to you without thinking it through?  If I ever have done that I aplogize right now!  Never think for even one moment that you’re not the world to me!  Do any of us really comprehend the power of our words or the lasting impression they can make if we’re not around long enough to further explain them or reinforce our real feelings through more consistent and positive behaviors? 

    I went back to the Rec Center as an adult.  The parking lot is actually just a few rows wide and there’s probably six fields.  The rocket ship didn’t reach the sky and the old slide was long gone.  I guess someone finally figured out that nothing good could come from kids sliding through a rusty old oil barrel.   Isn’t it funny how big things appeared when you were a kid?  Racquet’s West was shut down long ago and coverted into office space.  I can’t drive by either place without some memory of my childhood coming up and I wonder if someday the beaches of West Michigan will have the same effect on you.  What words have I said, what places have we visited and what things have I done that if I were gone tomorrow would stick with you when you were 40 years old?  I hope that list is full of happy, loving memories and great times.

    I love you to the moon and back,

    Mommy